Archive for May, 2016

Body Positivity & Disability

The body positivity movement is an extension of the fat acceptance movement, but designed to be more inclusive to all body types. The goal of working towards loving your body for what it is, rather than what it is not, is laudable and a state of being I would love to achieve for myself one day. It sounds like a really useful arena for visibly disabled people to counter the negative looks and comments that come with it and also a really useful tool for every person living with chronic health conditions that cause pain, fatigue, discomfort, and other often unwanted and unpleasant effects.

Sadly the movement is based in an unequal world, and is therefore shaped by people who often have internalised disablism, sexism, racism, and a whole host of other issues too. It unintentionally forms barriers to disabled people and I want to take a few minutes to talk about them. Continue reading

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On Cancer & Chronic Illness

Heya! It’s been a weird year for me, loads of stuff, a lot of it crippling anxiety and a complete loss of motivation, has prevented me from blogging. I’m sorry about that.

As you probably know, I’ve been dealing with chronic health problems for years now; chronic pain, vomiting, nerve damage, gastrointestinal damage, and joint hypermobility. I developed a hiatus hernia in September which was having some pretty severe side effects, so I had an abdominal CT scan at the start of this year. It didn’t just find the hernia, but it also found a shadow on my right kidney. I had a more detailed scan in March, and in April a very nice Urologist and a Macmillan nurse told me the mass was solid, and most likely cancerous (over 90% chance), otherwise it would be precancerous with a very high chance of becoming cancer in the future. They tabled surgery within 4 weeks, and got it out. I’m currently recovering after having a open partial nephrectomy and getting the 21 staples removed this morning.

I’ve been thinking about the ways in which cancer is treated differently to other chronic illnesses, many of which also have pretty depressing prognosis’s; Continue reading

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